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Arizona Parents' Charity Fights Inherited Blindness After Son's Diagnosis

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After their son Luke was diagnosed with Bardet-Biedl syndrome, an Arizona couple founded the charity A Race Against Blindness. The organization has raised more than $6.1 million to fund research into inherited retinal diseases. To boost awareness, they ran a sweepstakes offering a custom adventure van as the prize. Their donations are backing gene therapy research targeting the BBS1 gene. Funding has also grown to support studies on several other inherited retinal conditions.

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